Project: Access barriers that affect the human dignity of people with ASD and their families.
Based on the commitments acquired by Colombia, as a party country that approved the Convention on the Rights of Persons with Disabilities CDPCD, through Law 1346 of December 13, 2006, and as contemplated in article 8 of this international treaty , LICA, and the Faculty of Law of the Free University of Colombia of the city in Bogotá, advance the project "Access barriers that affect the human dignity of people with ASD and their families."
During the year 2020, we made progress in carrying out focus groups with people with autism and with families from 10 cities in Colombia (Barranquilla, Bogotá, Cartagena, Cali, Cúcuta, Duitama, Medellín, Pereira, Bucaramanga and Villavicencio).
Project: Promote the quality of life and the sexual and reproductive rights of people with disabilities in Colombia.
Since 2015, we have been in this project led by PROFAMILIA and partner organizations such as PAIIS - Action Program for Equality and Social Inclusion and ASDOWN - Colombian Down Syndrome Association. We are currently working on the third stage, which will be extended to the cities of Barranquilla, Bogotá, Bucaramanga and Manizales, where we have the support of family organizations.
Within the framework of the project we have developed different instruments such as: virtual course, support booklet to be used in the care route that Profamilia has and the investigation "Prevention and approach of sexual violence in people with disabilities from a social determinants approach" . Available here: https://bit.ly/2VcTMPR
During the time of the project, people with intellectual and psychosocial disabilities in the cities of Bogotá, Barranquilla, Cali, Bucaramanga and Manizales have been positively impacted.
PROJECT: Genetic Heterogeneity of Autism
The Center for Genetic Research in Human Diseases (CIGEN) of the Universidad de los Andes, since 2011, is carrying out the project "Genetic Heterogeneity of Autism", in collaboration with the Colombian Autism League, the Monserrat Clinic and the Santafe Foundation. The purpose of this project is to get closer to understanding possible factors related to autism spectrum disorder (ASD), and in this case we want to evaluate genetic factors.
LICA's role in the project is the application of the ADIR and ADOS tests, which is carried out by certified professionals for this purpose. These instruments are considered key in the clinical and research evaluation of ASD.
The ADI-R (Autism Diagnostic Interview-Revised): is a structured interview that is applied to parents, which covers topics from the history of the complete development of the child or young person, and the ADOS (Autism Diagnostic Observation Schedule): it deals with of a semi-structured assessment in which the child or young person develops various activities or tasks that allow observing the social behavior and communication of the child or young person.
PROJECT: Humanity & Inclusion
Technical Assistance to the Colombian Coalition for the Implementation of the United Nations Convention on the Rights of Persons with Disabilities (CRPD) in its promotion work, preparation of the Alternative Report and recommendation in the context of the pandemic.
With this project, the entities involved, in particular the Colombian Coalition for the Implementation of the United Nations Convention, recognize the condition that the context of the COVID-19 pandemic has generated for people with disabilities, and with a view to carrying out monitoring and follow-up on compliance with the provisions of the Convention on the Rights of Persons with Disabilities2, and consider it essential to have technical assistance for the preparation of the Second Alternative Report. Under this premise, the LICA - Colombian Autism League and the Observatory on the Convention of the Master's Degree in Disability and Social Inclusion - MADIS of the National University of Colombia, decided to work together to lead this project during the months of October 2021 to January 2022. These organizations were assigned the execution of this project, among other aspects, taking into account that they have been active members with experience in the construction of the first alternative report of 2016.
